JAMIE PETRONE is a lifelong seasoned performer whose passions are musical theater and singing. At age 19, a heinous misdiagnosis and near lethal dosage of doctor-prescribed medication resulted in progressive semi-paralysis originating from Steven’s Johnson Syndrome. This condition is a systemic, often fatal allergic reaction which forced Jamie into a wheelchair for the last 12 years. After a series of grueling clinical trials beginning in February 2013, Jamie was accepted in a pilot study to learn to walk in the exoskeleton.
In this documentary, we follow Jamie's life told through her narrative of a person who was ambulatory for most of her life; in a wheelchair for 12 years; and is given the opportunity to walk again. We witness what daily life is like for Jamie in an honest and non-patronizing manner. The themes of defining false hope the burden of inspiration, and defying stereotypes are examined through Jamie's process.
We learn about her relationship with her mother SALLY, who is shooting the raw footage for this project. And Jamie's father RICK a jazz musician, who is Jamie's rock and best friend. We watch Jamie performing in her wheelchair for a mixed-abilities dance performance launching her not for profit inclusive arts conservatory, Thisability.
We observe Jamie preparing for a live singing performance on The Today Show with Kathie Lee Gifford and Hoda Kotb.
The reactions of on lookers are captured as Jamie walks through Central Park in the exoskeleton.
We encounter her family and childhood friends through interviews & filmed interaction. We watch Jamie let loose at a Disability Expo where she is measured for her made-to-order wheelchair. We go to the Pentecostal church she attends in Connecticut.
We see her auditioning and living the life as an actress and witness her unwavering passion to develop ThisAbility an inclusive arts program for both budding disabled and able-bodied performers.
Mainstream perceptions of disability are challenged by how actress & wheelchair dancer Jamie Petrone lives her life and explores the possibility of being able to walk again.
Produced by I Ain't Playin' Films, NYC.
To view the teaser & for project updates please visit:
Please help us bring Jamie's compelling life onto the screen by making a tax-deductible charitable donation. Thank you.