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The Art for Arachnoiditis Project

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The Art for Arachnoiditis Project
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I started the Art for Arachnoiditis Project for fellow spinal arachnoiditis survivors in 2014. As a charitable project of SheilaLynnK Art Studio; the mission is to empower Arachnoiditis Survivors via participation in the arts. In addition to the FREE Creative Wellness Independent Study Program for Arachnoiditis Survivors, the project provides an affordable venue for Survivors to tell our story through Independent Publishing Services, display original healing art by Arachnoiditis Survivors, encourage healing through assorted Healing Art Activities, and creative practices used in ancient and modern art therapy applications, provide methods for arachnoiditis survivors to document survival and adaptation through the arts, establish a venue to publicize arachnoiditis awareness/prevention events using original art by Arachnoiditis Survivors, and (to the best of my ability) supply credible links to resources for survivors. Originally a one-to-one survivor portrait project; it grew into an international resource for fellow survivors on the site I created for us at artforarachnoiditis.org. 271 survivors from around the world are currently registered at the Art For Arachnoiditis Project. The connections created here work to defy the isolation of spinal adhesive arachnoiditis. Though this has resulted in a significant increase in arachnoiditis awareness (NYS Governor Cuomo has proclaimed July to be arachnoiditis awareness month), the completion of numerous self-prescribed physical milestones in my own recovery, is a source of connection, and has become a rewarding achievement in its own right; it doesn't exactly pay the bills. … AND I have MORE art to make to share. An arts advocate for life; my studio business and creative works are built around the concept of accessible and affordable art. I have to express my sincere gratitude for the encouragement, support, and participation I have received from so many people as this project evolved over these last four years. All existing resources for survivors will continue to live in their place on the web. However, I will be closing the live participation aspects of the Art For Arachnoiditis Project in August 2018. Creative Wellness Works. Healing is Happening.

Details

Many Thanks to all who joined us on this journey!
Existing resources and art by survivors submitted during the four years of this project will continue to live FREE to the public HERE.
EXPLORE ALL FOUR YEARS OF THIS WORK HERE

FREE CREATIVE WELLNESS INDEPENDENT STUDY PROGRAM FOR SURVIVORS

Arachnoiditis Survivors registered at the Art For Arachnoiditis Project receive this Independent Study Program at no cost. CONTACT the Studio with the message, “I am an arachnoiditis survivor in ( your state/province, country), please send me the Creative Wellness Independent Study Program” to sign up now and add my location to the Map of Arachnoiditis Survivors registered at the project.
[Module FIVE Includes the 2018 I Stand For Love Calendar on orders placed BEFORE July 1, 2018. 2019 Calendar Options TBA.]

IF YOU ARE NOT AN ARACHNOIDITIS SURVIVOR BUT YOU WOULD LIKE TO PURCHASE THIS PROGRAM ($35); YOU CAN FIND OUT MORE ABOUT THAT HERE. Individual Modules also sold separately.

Since you will receive all of the content at once; you have the option to schedule it into your calendar as you choose. For best results; I recommend completing these activities in consecutive order and allowing yourself at least two to three weeks to fully explore the topics introduced in each module. For planning purposes, Scheduling suggestions are included.

CREATIVE WELLNESS PROGRAM CURRICULUM OUTLINE

In the First Module (suggested schedule: one-two weeks)

We will work to establish your safe space. This space will Shelter you as you do this important work. Transformation is an on-going process. There is no “end-game”… You have the power to designate a safe place to allow your own transformation to occur. Topics, Re-usuable Worksheets and activities include:

Fortress for a Naked Thing Recap and Reference from the Art For Arachnoiditis Project 
Tools to Build Your Own Shelter 
If You Build it You Can Go There

In the Second Module (suggested schedule: one-two weeks)

We find out more about the Power of Joy, finding it, naming it, and knowing it. Re-usuable Worksheets and activities include:

Joy Is Powerful with printable worksheet 
Grace Happens ~ Your Assignment Should You Choose To Accept It 
Quick DIY art journal instructions

In the Third Module (suggested schedule: two-three weeks)

We explore individual Adaptability. Here you will find tools that will help you Assess and Improvise to Overcome your obstacles to Wellness. Topics, Re-usuable Worksheets and activities include:

The Adapt-Around Art Activity and Metamorphosis Mandala 
Adaptability Assessment and Time Management Tool 
Adapting for YOUR body Guidelines 
Your Assignment Should You Choose to Accept It ~Cuts Like a Knife (48 Hour Challenge also pertains to Module Five)

In the Fourth Module (suggested schedule: three weeks)

We go deep into finding out what is stopping you from being sovereign over the shape of your life. You will have the opportunity to work through tasks and activities that will help you to establish your Autonomy. Topics, Re-usuable Worksheets and activities include:

Sovereignty Over the Shape of Your Life 
Un-masking the Naked Truth~Mask-making Art Activity with printable templates 
Your Vision of Autonomy 
Let's Talk About Control 
Shape-Shifters Creative Focus Art Activity with link to demo video

In the Fifth Module (suggested schedule: three-four weeks)

We ask and answer the important question, “How do you nourish your Wellness?” Quality input, communication, and connections are equally important Sustenance for Independent Wellness. Topics, Re-usuable Worksheets and activities include:

Cuts Like a Knife ~ Revisiting the 48 Hour Challenge 
Quality Input ~ Creating the Right Tools to Feed YOUR Wellness 
FIVE Steps to Create the Tools: 
ONE Shed the Crap~Fertilize Your Transformation w/printable activity sheet and Cut-out template 
TWO Replacing the Crock of Crap~Lessons in Love-based choices and Vessels for Wellness for Body, Mind, and Spirit~printable worksheet and Extension Activity, Ingredients List for Anti-inflammatory menu 
THREE Connecting the Dots ~ Cultivating an Appropriate Habitat 
FOUR Your "Right" Cluster ~ How to establish your Cluster. cluster Cards for Creative Guidance Includes Message Guide and Cluster Cards printable templates to color and cut, instructions for Cluster Cards Mobile (extension art activity), Creating your Own Cluster 
FIVE Clustered Communication ~Expectations and Connections

UPON CONFIRMATION OF REGISTRATION

You will receive ALL FIVE modules of the content with links to references and resources as well as, printable worksheets and activities that are yours to keep. (This is NOT an automated service. Allow 2-5 business days for manual e-delivery of your program content.)

Because Wellness is truly a never ending journey that fluctuates as we define the term relative to our life experiences; you will be able to Re-use and re-visit this content that you save on your own device at your leisure as your Wellness Evolves with you. 

FISCAL SUMMARY ~Mar.2014- -June 2018~

Contributions from SheilaLynnK Art Studio
Art In-Kind (unpaid) Admin & Studio Hours: 1,537.5
StudioCash Contributions: $1,904
Artist Stipend Paid to date: $218 of $10,040 set at Year 1
The Art For Arachnoiditis Project complete current Income/Expense Report is HERE.
Tax-deductible contributions to reimburse the artist for the unpaid portion of the artist’s stipend and expenses incurred during the course of this project and to fund future web fees and project maintenance can STILL be made at NYFA or via check made payable to The New York Foundation for the Arts, MEMO: The Art For Arachnoiditis Project;
MAILED TO:
 SheilaLynnK Art Studio 

345 South Main Street Wellsville, NY 14895.
Contributions of $2500 or more must be accompanied by a Contribution Letter.

Read the April 2018 Project Newsletter 

SUBSCRIBE TO RECEIVE NEWS AND UPDATES IN YOUR EMAIL

Current project activities, announcements, and studio updates are also FREE to the public in the Activity Feed on Sheila’s Patreon Page.

TESTIMONIALS AND ENDORSEMENTS

July Is Arachnoiditis Awareness Month

OUR FINAL FEATURED ARTIST

FROM YEAR 3 (2016-2017) 

Titled “Painder”; Kellie says, “Back in 2009, I began sketching a ‘female spider’ to express to others the pain I was experiencing – needing all of the legs of a spider to communicate the burning, freezing, electrical, stabbing ants with hot tap shoes, etc. kinds of pain I battled 24/7.”  

Featured Art from the 2016-2017 (Year 3) Cycle

New to the project? Visit THE PROJECT PAGE to see what this is all about. 

At the risk of over-simplifying... Arachnoiditis is a spinal cord injury caused by the neurotoxins in spinal injections and invasive spinal procedures.READ  MORE ABOUT ARACHNOIDITIS

To minimize the cost to the Arachnoditis Survivors for shipping, insurance, and other usual exhibition expenses; There IS a $5 registration fee for the Survivors' Art Exhibit to assist with the cost of  making prints and processing digital entries for display. Other than that one annual exhibit fee; All Spinal Arachnoditis Survivors registered receive Project Benefits for FREE since the project began. 

 In addition to providing our Survivors' Art Exhibit featuring Art by Spinal Arachnoiditis Survivors from around the world, Providing Existing Independent Publication Services for Survivors who would like to tell their side of the story, and maintaining the FREE Healing Art Activities and Resources on the Website for Survivors;  

The project is supported by Me, Generous Sponsors, and by Private Funding from people like You. 

Support the Project when you make your tax deductible contribution here at NYFA or

BECOME A BUSINESS SPONSOR

GET REWARDS WHEN YOU BECOME A PATRON TO SUPPORT THIS PROJECT  

THE YEAR 2 SURVIVORS' ART EXHIBIT OPENING RECEPTION 2016

 

 

Survivors develop a Creative Voice About the Outcomes of Patient Harm as they pursue a path to Creative Wellness at artforarachnoiditis.org. This video features Art by the Arachnoiditis Survivors and the YEAR 2 Survivors' Song Entry, "Needles," by Brock Babcock, husband of Arachnoiditis Survivor Michelle Babcock. 

The 2015-2016 Cycle will continue to include Art By Survivors in all genres, the exhibit will travel to other locations.Survivors who submitted entries for the YEAR 2 Exhibit were entered for a chance to win an Arachnoiditis Survivor Portrait package. 

Survivor Portrait Recipients

Art For Arachnoiditis YEAR 2 Survivors' Exhibit Poster

SUBSCRIBE TO RECEIVE PROJECT NEWS AND BUDGET UPDATES IN YOUR EMAIL

INDEPENDENT PUBLISHING PROJECTS BY SURVIVORS The Art For Arachnoiditis Project YEAR 2 Budget includes ISBNs Fees for Independent Publication for Arachnoiditis Survivors. We can get 10 ISBNs for $295

  1. "How to trust your doctor (a.k.a. “Any Medical Practitioner”) after a medical injury." {An Independent Publication of the Art For Arachnoiditis Project} pdf Available Now
  2. Completed and Ready for an ISBN

The Project is Expanding to Include a Hands-On Creative Wellness On-site and E-Course Component. Survivors are invited to share their results (*optional) in our online gallery and during Survivors' Art Exhibits Open to the Public. 

PROJECT HISTORY

Using Art to Empower and Provide Healing Support & Connections For Spinal Arachnoiditis Survivors this Charitable Creative Wellness Art Project created by Sheila at SheilaLynnK Art Studio began as a one-to-one Survivor portrait project and Has since expanded to serve Arachnoiditis Survivors around the world.
By Invitation, The First Exhibit featuring Art By Survivors, traveled Upstate New York from April to December 2015, as part of the Artist Among Us Touring Art Program. "Artists Among Us" is a touring art program created by the Fountain Arts Center, Belmont, NY. The Artis Among Us program is funded in part by the New York State Council On The Arts Decentralization ReGrant Program with support from Governor Andrew Cuomo and the New York State Legislature administered through the Cattaraugus County Arts Council. 

This video features art by spinal arachnoiditis survivors and the FIRST Song Entry (at the 2:45mark) for the project's YEAR 2 Survivors' Song Search. VOTING BEGINS after all entries are received. Deadline Feb. 15, 2016

(This video was made possible by SheilaLynnK Art Studio Patreon Patrons.)

LIMITED LIBERTY INTERACTIVE INSTALLATION ~To Include Survivors from Near and Far, Names of ALL registered Arachnoiditis Survivors, including those registered for the Map of the Survivors, were inserted into prescription bottles and suspended throughout the exhibit at assorted heights to simultaneously illustrate the limitations placed upon us by the medical injury, the freedom/impairment dichotomy that comes with prescription medication for pain management, and OUR DETERMINATION TO COME TOGETHER ANYWAY.

The Art For Arachnoiditis Project websiteartforarachnoiditis.org - Served 93 Countries in 2015. It is dedicated to art and healing which targets the needs of arachnoiditis survivors. Survivors also connect via the affiliated Facebook page. The Website displays original healing art by Arachnoiditis Survivors, encourages healing through assorted art or creative practices used in ancient and modern art therapy applications, provides methods for arachnoidits survivors to document survival and adaptation through the arts, establishes a venue to publicize arachnoidtis awareness/prevention events using original art by Arachnoiditis Survivors, and works to supply credible resources for survivors.

 

The Map of Arachnoiditis Survivors View the live google Map of Spinal Adhesive Arachnoiditis Survivors Registered at the Art For Arachnoiditis Project 

Map of Spinal Arachnoiditis Survivors Registered at the Art For Arachnoiditis Project

Preview the Art By Arachnoiditis Survivors Coffee Table Art Book

The Art By Survivors Art Book is available now. 

The Art + Adaptability = Healing A FREE presentation from the Art For Arachnoiditis Project 

  

Independent Adaptive Art Activity Offered at the year 1 Opening Reception 

This Independent Adaptive Art Activity at artforarachnoiditis.org was designed to demonstrate a method to accommodate Spinal Arachnoiditis in the workplace/Art Studio. Spinal injuries vary. Always consult your trusted physician when selecting an adaptive device.

Still Standing Sometimes The Arachnoiditis Survivor Story ~available to the public as funding permits.

Arachnoiditis In Real Life (Digital Photography Series Documenting Permanent Injury and Adaptability)

The Arachnoiditis Survivor Portrait Project Arachnoiditis Survivors' Conceptual Portrait Series

WATCH PORTRAITS IN PROGRESS 

 

 

WORK IN PROGRESS RELEASED FOR SALE APRIL 30, 2016 

Creative Pain Management Assessment and Activity Book for use in Creative Wellness Activities